Background
Comprehensive and coordinated care in primary care settings relies on having timely access to subspecialty care and services as needed. For families of children with chronic health conditions or special health care needs delays in access to pediatric subspecialty care can impact development, diagnosis, and prognosis. The research team sought to understand delays in access to pediatric subspecialty care and the impacts of these delays on CYSHCN and their families. In addition, this survey explored experiences with peer to peer support, also known as family-to-family support, in which families of CYSHCN provide help to other families of children with similar conditions. Included in the table below are PDF factsheets and reports on topics such as survey methods and impact of delays in care on children and their families.
Study Factsheets
Title | |
Access to Applied Behavior Analysis in California |  |
Delays in Access to Pediatric Subspecialty Care in California: Methods | |
Impact of Delays in Care | |
Report on Family Perspectives on Peer Support | |
Travel Time and Family Preferences | |
Report Back and Celebration Webinar
Check out this informational webinar, in English or Spanish, about results from the survey, what was learned and how that is being used in legislative advocacy:
- English Webinar: https://youtu.be/gC1PzSE1d1o
- Spanish Webinar: https://youtu.be/Htuclf6l8wQ
This study was made possible due to generous support from the Lucile Packard Foundation for Children’s Health.
